Web-Based Resources

Disclaimer: The pages in this section contain external links that are not the responsibility nor under the control of MemoryCare.  While we make every effort to identify sites that may be of use to families dealing with cognitive disorders, MemoryCare cannot attest to the accuracy, prevalence, or comprehensiveness of the information on any other site pages — such data are entirely the responsibility of the Webmaster of the site visited.  MemoryCare does not endorse any commercial products or services that might be mentioned on these sites.

 

The following links are in alphabetical order.

AARP.org
American Association of Retired Persons covers a broad range of information that includes health and wellness, legislative issues, leisure, and life transitions, as well as information on member services and discounts.

 

Aboutalz.org
Four pocket films explaining the essence of the disease and its public health implications.

 

Administration on Aging
Includes detailed information about The Older Americans Act, The Administration on Aging, and The Aging Network. Links too many other helpful sites.

 

AgingCare.com
Focusing on the needs of caregivers this website offers an active forum for connecting caregivers with expert information.

 

Alliance for Aging Research
The private, not-for-profit Alliance for Aging Research is the nation’s leading citizen advocacy organization for improving the health and independence of Americans as they age. The Alliance was founded in 1986 to promote medical and behavioral research into the aging process. Since then, and as the senior boom approaches, the Alliance has become the voice for baby boomer health by developing, implementing and advocating programs in research, professional and consumer health education, and public policy.

 

Alzheimer’s Association National Office and Web Site
The Alzheimer’s Association is the largest national voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease. Information is geared towards researchers, healthcare professionals, and families. General information is under About Alzheimer’s. Scientific theories on the causes of AD are under Research. Media carries the most recent findings reported in the medical literature. The Resources section has the most in-depth information: association fact sheets and brochures, library resource lists, glossary, and a topic index of internal and external resources.

 

Alzheimer’s Association–Western North Carolina chapter
The mission of the Alzheimer’s Association–WNC chapter is to ensure that a comprehensive system of support, education, advocacy, and research is available for individuals affected by Alzheimer’s disease and related disorders, and their caregivers and families, in the 25 westernmost counties of North Carolina through the identification, development, and coordination of local, regional, state, and national resources.

 

Alzheimer’s Disease Education and Referral Center (ADEAR)
As a public, U.S. Government-funded resource, the ADEAR Center strives to be a current, comprehensive, unbiased source of information about Alzheimer’s disease. All information and materials about the search for causes, treatment, cures, and better diagnostic tools are carefully researched and thoroughly reviewed by NIA scientists and health communicators for accuracy and integrity.

 

www.alz.org/trialmatch
The matching service works a bit like an online dating site. Patients or their caregivers fill out a basic profile and then get a list of potential matches with doctors in their area looking for patients for their studies.

A site for Christian and Jewish caregivers of persons with dementia. The first Waves of Faith episode aims to provide Jewish caregivers seeking a connection with their faith an opportunity to be uplifted and comforted as they face each day in their role as caregiver of a loved one who has Alzheimer’s disease or some form of dementia.

 

Alzheimer’s Disease Research Center of Washington University
The Alzheimer’s Disease Research Center (ADRC), in the Department of Neurology, at Washington University School of Medicine in St. Louis, Missouri, is one of 32 centers funded or otherwise supported by the National Institute on Aging with the collective aim of facilitating advanced research on clinical, genetic, neuropathological, neuroanatomical, biomedical, neuropsychological, and psychosocial aspects of Alzheimer’s disease and related brain disorders.

 

Alzinfo.org
The Fisher Center for Alzheimer’s Research Foundation studies the cause, cure and care of those with Alzheimer’s disease and provides educational programs.

 

Alzheimer’s Research Forum
A scientific knowledge base on Alzheimer’s disease, with research news, expert commentaries, and databases for peer-reviewed articles, drugs, research reagents, grants, jobs, conferences, and more.

 

American Parkinson’s Disease Association
The APDA’s goal of promoting a better quality of life for the Parkinson’s community is actualized through an expanding network of information and referral centers. The unique contribution of these centers is to respond to the particular needs of persons affected by Parkinson’s disease and their caregivers through education, referral, support and public awareness programs.

 

American Society on Aging
Professionals throughout the country rely on the American Society on Aging to keep them on the cutting edge in an aging society. Through renowned educational programs, publications and information and training resources, ASA members tap into the knowledge of the largest network of professionals in the field.

 

A Place for Mom
A Place for Mom is a senior care referral service. Advisors or counselors are available to offer knowledge about placement facilities in the area as well as offer guidance and support to family members. The service is free to families; agents are paid by facilities.

 

Apoe4.info
A group of people who are carriers of the APOE-ε4 allele, which forces them to grapple with elevated health risks including Alzheimer’s and cardiovascular disease. Some members are experiencing symptoms today, and others are caring for affected family or friends. They’re all searching for prevention and remediation strategies.

 

Area Agency on Aging – Land-of-Sky Regional Council  
Works with local governments, organizations, and volunteers to develop a comprehensive, coordinated system to improve the quality of life for older adults in Buncombe, Henderson, Madison and Transylvania Counties.

 

Assisted Living Federation of America
The Assisted Living Federation of America (ALFA) includes for-profit and not-for-profit providers of assisted living, continuing care retirement communities, independent living and other forms of housing and services, including a full range of housing and care providers who share ALFA’s consumer-focused philosophy of care.

 

BigTreeMurphy.com
This website offers tips to caregivers of a loved one with dementia. It was designed by Beverly Bigtree Murphy, who cared for her husband who had dementia. She depicts her personal journey in her book, He Used To Be Somebody.

 

Brain in the News
The Dana Foundation is a private philanthropy with principal interests in brain science, immunology, and arts education.

 

Buncombe County – Adult Care Homes Info
Information on adult care homes in our area.

 

Buncombe County – Veteran Assistance
The home page for Buncombe County Veterans Service Office, which offers assistance to veterans, service members, and their families in obtaining a wide range of services.

 

Caring.com
A website dedicated to caregivers. Providing resources, education, and support. This link will take you to the caring.com Alzheimer’s page specific to steps and stages of the disease.

 

Caringinfo.org
National Hospice and Palliative Care Organization website, including family and patient education and resources. To view a pdf version of their guide to Advance Directive Planning, click here.

 

TheCaregiversGuide.com
A free Guide that provides caregivers with and easy to implement and inexpensive way to maximize the well-being of their loved one and stress associated with caregiving.

 

CareGuide
A care management company dedicated to helping people at every stage of aging lead more comfortable, secure and independent lives. Through our national network of care managers, toll-free support center and website, CareGuide provides families with everything they need to assess, plan, manage and monitor the best care for their loved ones.

 

Caregiver.com
Produces Today’s Caregiver Magazine, the first national magazine dedicated to caregivers, the “Sharing Wisdom Caregivers Conferences.” and our website, caregiver.com, which includes topic-specific newsletters, online discussion lists, back issue articles from Today’s Caregiver Magazine, chat rooms and an online store. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.

 

ThisCaringHome.org
Interactive web site providing information on how to create safer homes for people with dementia and ways to adapt the home environment to meet the behavioral and physical needs of people with Alzheimer’s.

 

CarePartners Adult Day Program
A program based in Asheville, NC, the adult day program provides high quality day services for impaired adults, including those with dementia. It offers a way for impaired adults to maintain their independence by living in their own homes and having a place for stimulating activities during the day in a safe and supervised environment.

 

CarePartners Hospice and Palliative Care
Hospice care is provided under Medicare and Medicaid and by many private insurance companies, CHAMPUS and/or the Veterans Administration. A payment plan is available and, to the maximum extent possible, care will be provided regardless of a patient’s ability to pay. The hospice team, in consultation with the patient’s physician and long-term care staff, provides intermittent specialized services to maximize symptom and pain control and offer emotional and spiritual support to patients, family and friends.

 

Caring From a Distance
An organization for long-distance caregivers caring for an aging parent.

 

Centers for Disease Control & Prevention Exercise Recommendations for Older Adults
Website of the CDC with special recommendations about exercise for older adults.

 

Centers for Medicare and Medicaid Services
Centers for Medicare and Medicaid Services provides a collection of information on plans and providers. Topics include fraud and abuse, managed care, payment systems, statistics and data, and the health insurance marketplace available under the Affordable Care Act.

 

The Center for Practical BioEthics
A nonprofit, independent organization nationally recognized for its work in practical bioethics. Since 1984, the Center has helped patients and their families, healthcare professionals, policymakers and corporate leaders grapple with ethically complex issues in medicine and research. Also provides information about advance directives and how to conduct “caring conversations.”

 

Coda Alliance
Coda Alliance is a community-based, not-for-profit organization helping individuals and their families plan and prepare for the concluding passages of life. Information at the website includes discussion of end-of-life care with families and healthcare providers and those collaborating with other community groups and healthcare institutions about this issue.

 

Cognitive Neurology and Alzheimer’s Disease Center (CNADC)
CNADC is a multidisciplinary organization dedicated conducting research to learn how the brain coordinates mental functions such as memory, language, attention, and emotion. staff work to train researchers and clinicians who want to work in this field and to use the information they learn to benefit people with brain a disease that impairs cognitive function.

 

Cognitive Function Screening Test – Online
The Cogniciti Brain Health Assessment is specifically aimed at adults 50-79. It takes 20 minutes by using game-like activities, which scientists know are sensitive to changes in brain health due to aging, including matching games, and face and name recognition. Those who complete the test will receive an immediate Yes/No report about whether to take their memory concerns to their doctor.

 

Department of Veterans Affairs
The Department of Veterans Affairs (VA) website is a worldwide resource that provides information on VA programs, veterans benefits, VA facilities worldwide, and VA medical automation software. The site serves several major constituencies, including the veteran and his or her dependents; veterans service organizations, the military, the general public, and VA employees around the world.

 

Depression and Bipolar Support Alliance (DBSA)
The mission of the National Depressive and Manic- Depressive Association is to educate patients, families, professionals, and the public concerning the nature of depressive and manic-depressive illness as treatable medical diseases; to foster self-help for patients and families; to eliminate discrimination and stigma; to improve access to care; and to advocate for research toward the elimination of these illnesses.

 

Duke University’s Alzheimer’s Disease Research Center
Provides information about the Joseph and Kathleen Bryan Alzheimer’s Disease Research Center including clinical and research links.

 

Duke University Center for the Study of Aging and Human Development
The Center for the Study of Aging and Human Development was one of five centers for geriatric research established by the Surgeon General of the United States in 1955 and remains a vital national resource for the study of aging. Current research includes studies of dysmobility, osteoporosis, Alzheimer’s disease, cancer, viruses, depression in later life and caregiver stress.

 

ElderCare Online
ElderCare Online offers information for those caring for aging loved ones. Whether caring for a spouse, parent, relative or neighbor, there is an online community where supportive peers and professionals can help improve quality of life for yourself and the elder you care for.

 

Elderweb
Offers articles for both professionals and family members on elder care and long-term care and includes links to information on legal, financial, and housing issues as well as policy, research, and statistics.

 

The Family Caregiver Alliance
Gives specialized information on Alzheimer’s disease, stroke, traumatic brain injury, Parkinson’s disease, ALS and other disorders and long-term care concerns. Click here for their online caregiver’s support group, Family Caregiver Alliance’s Online Caregiver Support Group

 

Families USA
This organization works at national, state, and community levels as a voice for health care consumers. Health policy reports are available online as are the articles pertaining to Medicare, Medicaid, managed care, and uninsured, and ACA.

 

4Therapy.com
Site includes a therapist locator nearest to your zip code and information on different life issues including grief, suicide, substance abuse, emotional and physical abuse, and stress.

 

Growth House
Offers a guide to death, dying, grief, bereavement, and end-of-life resources. A search engine is provided which includes a collection of reviewed resources for end-of-life care. Growth House also hosts the Inter-Institutional Collaboration Network on End-of-Life Care, which links major organizations internationally.

 

Healthfinder
Healthfinder® is a free guide to reliable consumer health and human services information. Developed by the U.S. Department of Health and Human Services, Healthfinder® leads to selected online publications, clearinghouses, databases, websites, and support and self-help groups as well as government agencies and not-for-profit organizations that produce reliable information for the public.

 

Home Instead Senior Care
Provides non-medical companions and home care for the elderly. These services are provided through a network of franchise offices throughout the United States, Canada and Japan.

 

International Council on Active Aging
International Council on Active Aging® (ICAA) was founded to unify the efforts of organizations focused on older adults and the organizations that serve them. The ICAA supports professionals and organizations with education, information, resources and tools so they can achieve optimal success with this market.

 

Insurance Information Institute
Provides information on a wide range of insurance categories, including long-term care.

 

International Foundation for Functional Gastrointestinal Disorders
IFFGD is a nonprofit education and research organization that addresses the issues surrounding life with gastrointestinal (GI) functional and motility disorders and increases the awareness about these disorders among the general public, researchers, and the clinical care community.

 

International Foundation for Research and Education on Depression (IFRED)
Organization dedicated to researching causes of depression, to support those dealing with depression, and to combat the stigma associated with depression.

 

Journal of Alzheimer’s Disease
An international multidisciplinary journal to facilitate progress in understanding the etiology, pathogenesis, epidemiology, genetics, behavior, treatment and psychology of Alzheimer’s disease. The journal publishes research reports, reviews, short communications, book reviews, and letters-to-the-editor. The journal is dedicated to providing an open forum for original research that will expedite our fundamental understanding of Alzheimer’s disease.

 

Lewy Body Dementia Association
Offers information, advice and support for patients with Lewy Body Dementia as well as for their family members and caregivers.

 

Living With Alzheimer’s Blog
For those who suffer from AD, caregivers, friends and medical professionals that want to share their feelings, thoughts, encouragement, vent and tell how they cope with this disease.

 

The Mayo Clinic
One of Mayo Clinic’s core principles is “to be a dependable source of health information for our patients and the public.” The site provides a gateway to a variety of online and other resources. Links available for more information about Alzheimer’s disease.

 

Medical Library Association for Health Consumers
Association dedicated to improving the quality and leadership of the health information professional in order to foster the art and science of health information services.

 

Medicare Nursing Home Overview
Provides a database and a comparison of certified Medicare and Medicaid nursing homes, a checklist to help visitors evaluate a prospective nursing home, related publications, and more.

 

Medicare Rights
Largest source of Medicare information and assistance.

 

Medline Plus
MEDLINEplus provides up-to-date, quality health care information from the world’s largest medical library, the National Library of Medicine at the National Institutes of Health. This site provides access to extensive information about specific diseases and conditions and also has links to consumer health information from the National Institutes of Health, dictionaries, lists of hospitals and physicians, health information in Spanish and other languages, and clinical trials.

 

Memory Bridge
Programs that connect people with Alzheimer’s disease and related dementias to family, friends, and other people in their local community. The goal is to create a global community of those that want to learn to listen to what people with dementia have to teach us about our own humanity.

 

Myseniorcare.com
A community on the topic of senior care providing information on home health care, assisted living, hospice and more.

 

Mission Hospitals
Mission Health System is a nationally recognized leader with over a century of care in Western North Carolina that was recently ranked as among the Top 15 in the United States. Of the more than 300 health systems reviewed from 2007 to 2011, Thompson Reuters found that as a patient, you will have a higher rate of survival, fewer complications, and shorter hospital stays. You’re also more likely to receive more evidence-based care.

 

Mountain Home Care
Asheville based organization providing in-home assistance with geriatric care management.  Purpose is to help seniors remain active and independent in the comfort of home.

 

The National Association of Nutrition and Aging Services Programs
A professional membership organization with members drawn primarily from persons working in or interested in the field of aging, community-based services, and nutrition and the elderly.

 

National Association of Area Agencies on Aging (N4A)
Directs visitors to its agencies that coordinate home and community based services, including home-delivered meals, transportation, and employment.

 

National Association for Home Care and Hospice
Provides news and information about home care and hospice.

 

National Alliance for Caregiving 
Supports family caregivers and the professionals who help them and seeks to increase public awareness of issues facing family caregiving.

 

National Association for Continence
Formerly Help for Incontinent People (HIP), the organization is a not-for-profit established in 1982 dedicated to improving the quality of life of people with incontinence. Its purpose is to be the leading source of education, advocacy, and support to the public and to the health professional about the causes, prevention, diagnosis, treatments, and management solutions for incontinence.

 

National Caregivers Library
An extensive online libraries for caregivers that exist today. It has hundreds of articles, forms, checklists, and links for topic-specific resources.

 

National Caucus and Center on Black Aged, Inc.
The only national organization dedicated exclusively to improving the quality of life for African American elders, particularly those of lower socio-economic status.

 

National Council on Aging
A network of organizations and individuals dedicated to improving the health and independence of older persons; increasing their continuing contributions to communities, society and future generations; Its additional website, BenefitsCheckUp, gives information and screening for benefits available to seniors with limited income and resources. The site includes more than 1,350 public and private benefits programs such as prescription drugs, nutrition, energy assistance, financial and legal help, in-home services, tax relief, volunteer services, and others.

 

National Family Caregivers Association
Supports family caregivers and speaks out publicly for caregivers’ needs. NFCA espouses a philosophy of self-advocacy and self-care predicated on the belief that caregivers who choose to take charge of their lives and see caregiving as but one of its facets, are in a position to be happier and healthier individuals. They are then able to have a higher quality of life and to make a more positive contribution to the wellbeing of their care recipient, all of which has a positive impact on society and health care costs.

 

National Healthcare Decisions Day
Find current advance directives forms for each state.

 

National Institutes of Health – Senior Health – Alzheimer’s
The main sections include a definition of AD, causes and risks, symptoms and diagnosis, treatments and research, and frequently asked questions.

 

National Institute on Aging-NIA
The NIA mission is to improve the health and well-being of older Americans through research, and  to support and conduct high quality research on aging processes, age-related diseases, and special problems and needs of the aged. The agency also disseminates information and communicates with the public and interested groups on health and research advances and on new directions for research.

 

National Institute on Aging Balance Exercise
Each year, U.S. hospitals have 300,000 admissions for broken hips, and falling is often the cause of those fractures. Balance exercises can help you stay independent by helping you avoid a disability – often permanent – that may result from falling.

 

National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health – NIAMS
NIAMS conducts and supports basic, clinical, and epidemiological research and research training and disseminates information on many of the most debilitating diseases affecting the nation’s health. These diseases include the many forms of arthritis and diseases of the musculoskeletal system and the skin.

 

National Institute of Neurological Disorders and Stroke
NINDS conducts and supports research on brain and nervous system disorders and on the normal and diseased nervous system. It also fosters the training of investigators in the basic and clinical neurosciences and seeks better understanding, diagnosis, treatment, and prevention of neurological disorders.

 

National Library of Medicine
Alzheimer’s disease links to numerous government agencies and nonprofit organizations that have prepared overviews of the disease. Additionally, it carries resources on symptoms and diagnosis, disease management, coping, research, genetics, and statistics. The Web page also links to recent news on Alzheimer’s and has materials specifically geared toward women, men, children, and teens. A sidebar links to web pages dedicated to caregivers, memory, the brain, and senior health. The Alzheimer’s Association, National Institute on Aging, Area Agencies on Aging, Fisher Center, Family Caregiver Alliance, American College of Physicians, and other source agencies are represented.

 

National PACE Association
PACE serves individuals who are age 55 or older, certified by their state to need nursing home care, are able to live safely in the community at the time of enrollment, and live in a PACE service area.

 

National Public Radio: Early Onset Alzheimer’s Disease
Listen to the NPR series on early onset Alzheimer’s disease in which they profile Tom Debaggio and his family. Mr. Debaggio was diagnosed with Alzheimer’s Disease at age 57.

 

National Resource Center on Supportive Housing and Home Modification
Caregiving often requires physical demands that strain caregivers, jeopardizing their own health, strength, and energy level. Home modifications (e.g., portable ramps, roll-in showers, widened doorways) and assistive devices can provide immediate relief and enhance the ability of caregivers to deliver care with less stress. Although often overlooked in discussions of support for caregivers, the home environment is a critical component that significantly impacts the capacities of caregivers and service agencies to provide assistance.

 

NC Department of Aging and Adult Services
State publications and resources.

 

New Life Styles
Find senior living and care options as well as senior products and services in your area.

 

North Carolina AHEC Latino Health Resource Center
Resources for health care providers and their Spanish-speaking patients. Check out Polyglot, a downloadable multimedia Spanish language translator brought to you by the Duke AHEC Program.

 

Pancreatic Cancer Action Network
PanCAN works to focus national attention on the need to find the cure for pancreatic cancer. We provide public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods.

 

Paying for Nursing Home Care
Explains many different aspects of paying for nursing home care.

 

Project C.A.R.E.
Caregiver Alternatives to Running on Empty uses a family consultant model to provide consumer-directed respite care and comprehensive support to caregivers. The goal is to increase quality, access, choice, and use of respite and support services for low-income rural and minority families caring for a person with dementia at home.

 

Quackwatch
A guide to health fraud, quackery, and how to make informed, intelligent decisions about your health. Provides information on who not to turn to for those decisions. Quackwatch, Inc., a member of Consumer Federation of America, is a nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies.

 

Right at Home
Right at Home in-home care lets loved ones enjoy healthy lives in the comfort of a familiar environment with care tailored to a unique situation through a custom care plan. These individualized care programs are carried out through their adult home care providers and include whatever your loved one needs from any of the care categories.

Seek Wellness
SeekWellness.com encourages, empowers, and supports health care consumers to improve their level of wellness by providing information, services and products, all chosen with the consumer’s best interests in mind.

 

Senior Fitness Association
Senior Fitness provides wellness and fitness information for seniors and those who will be senior citizens.

 

Seniors Helping Seniors 
Seniors Helping Seniors in home services provides non-medical in home care for seniors by seniors in a private or retirement home.

 

Senior Resource.com
The “E-cyclopedia” of housing options and information for retirement, finance, insurance and care.

 

Social Security Online: The Official Website of the SSA
The site offers information on how to apply for benefits, computing your benefits, disability information, how to appeal a decision, and a glossary of terms. Seventy-five social security forms are available to download. A list of publications is also included.

 

StrengthforCaring.com
Healthcare resources, caregiving resources, support information, local and national Asian-American resources.

 

Together Again: Creative Guide for Multigenerational Living
Topics covered include the financial and emotional benefits of living together. proximity and privacy, designing and remodeling, your home to accommodate elderly parents.

 

University of California (San Francisco) Memory and Aging
YouTube and the university have launched an Internet video channel dedicated to the improved understanding of neurodegenerative brain diseases.

 

University of North Carolina Institute on Aging
The Institute’s mandate is to promote collaborative applied and basic gerontological research, to develop innovative programs of interdisciplinary gerontological education and practice, and to provide state-of-the-art information to policy makers, program managers, service providers, clinicians, and the general public.

 

U.S. Department of Health and Human Services-Minority Health
Information on minority health from the DHHS. In the search box, please type “minority.”

 

U.S. Food and Drug Administration
A catalog of FDA-approved drug products, approved and tentatively approved prescription, over-the-counter, and discontinued drugs; drug approval letters, labels, and review packages

 

U.S. Living Will Registry
Electronically stores advance directives and makes them available directly to health care providers across the country by telephone through an automated computer-facsimile system. Because only health care providers have access to the advance directives, privacy and confidentiality are maintained.

 

The Virtual Village
The Virtual Village Website helps communities develop a structured program to help their members to age safely and successfully in their own homes. They can positively impact isolation, interdependence, health and help their individual members to reduce overall cost of services and care.

 

Wellspouse.org
Well Spouse is a national, not for profit membership organization that supports wives, husbands, and partners of the chronically ill and/or disabled.

 

Wisernow.com
Stimulating mental games, Alzheimer’s tips for caregivers, and books and downloadable online materials.

 

www.wkyk.com
Interview about MemoryCare services with Dr. Tom Kaluzynski and nurse care manager Misty Haire. On the home page, select local news tab at top, under Local News Headlines. Go down two lines to listen to Community Close Up, click there, and then scroll down to 4-29-08 to listen to a 5-minute interview.

 

Young Dementia
Website for persons with onset of memory disorders before the age of 65.