The Association for Frontotemporal Degeneration (AFTD)
AFTD’s mission is to improve the quality of life of people affected by Frontotemporal Degeneration (FTD) and drive research to a cure. AFTD works every day to advance: research, awareness, support, education, and advocacy.
Alliance for Aging Research
The private, not-for-profit Alliance for Aging Research is the nation’s leading citizen advocacy organization for improving the health and independence of Americans as they age. The Alliance was founded in 1986 to promote medical and behavioral research into the aging process. Since then, and as the senior boom approaches, the Alliance has become the voice for baby boomer health by developing, implementing and advocating programs in research, professional and consumer health education, and public policy.
Alzheimer’s Disease Research Center of Washington University
The Alzheimer’s Disease Research Center (ADRC), in the Department of Neurology, at Washington University School of Medicine in St. Louis, Missouri, is one of 32 centers funded or otherwise supported by the National Institute on Aging with the collective aim of facilitating advanced research on clinical, genetic, neuropathological, neuroanatomical, biomedical, neuropsychological, and psychosocial aspects of Alzheimer’s disease and related brain disorders.
The matching service works a bit like an online dating site. Patients or their caregivers fill out a basic profile and then get a list of potential matches with doctors in their area looking for patients for their studies.
Brain in the News
The Dana Foundation is a private philanthropy with principal interests in brain science, immunology, and arts education.
Cognitive Neurology and Alzheimer’s Disease Center (CNADC)
CNADC is a multidisciplinary organization dedicated conducting research to learn how the brain coordinates mental functions such as memory, language, attention, and emotion. staff work to train researchers and clinicians who want to work in this field and to use the information they learn to benefit people with brain a disease that impairs cognitive function.
Duke University’s Alzheimer’s Disease Research Center
Provides information about the Joseph and Kathleen Bryan Alzheimer’s Disease Research Center including clinical and research links.
Duke University Center for the Study of Aging and Human Development
The Center for the Study of Aging and Human Development was one of five centers for geriatric research established by the Surgeon General of the United States in 1955 and remains a vital national resource for the study of aging. Current research includes studies of dysmobility, osteoporosis, Alzheimer’s disease, cancer, viruses, depression in later life and caregiver stress.
International Council on Active Aging
International Council on Active Aging® (ICAA) was founded to unify the efforts of organizations focused on older adults and the organizations that serve them. The ICAA supports professionals and organizations with education, information, resources and tools so they can achieve optimal success with this market.
International Foundation for Functional Gastrointestinal Disorders
IFFGD is a nonprofit education and research organization that addresses the issues surrounding life with gastrointestinal (GI) functional and motility disorders and increases the awareness about these disorders among the general public, researchers, and the clinical care community.
International Foundation for Research and Education on Depression (IFRED)
Organization dedicated to researching causes of depression, to support those dealing with depression, and to combat the stigma associated with depression.
The National Association of Nutrition and Aging Services Programs
A professional membership organization with members drawn primarily from persons working in or interested in the field of aging, community-based services, and nutrition and the elderly.
National Association for Continence
Formerly Help for Incontinent People (HIP), the organization is a not-for-profit established in 1982 dedicated to improving the quality of life of people with incontinence. Its purpose is to be the leading source of education, advocacy, and support to the public and to the health professional about the causes, prevention, diagnosis, treatments, and management solutions for incontinence.
National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health – NIAMS
NIAMS conducts and supports basic, clinical, and epidemiological research and research training and disseminates information on many of the most debilitating diseases affecting the nation’s health. These diseases include the many forms of arthritis and diseases of the musculoskeletal system and the skin.
National Institute of Neurological Disorders and Stroke
NINDS conducts and supports research on brain and nervous system disorders and on the normal and diseased nervous system. It also fosters the training of investigators in the basic and clinical neurosciences and seeks better understanding, diagnosis, treatment, and prevention of neurological disorders.
National Library of Medicine
Alzheimer’s disease links to numerous government agencies and nonprofit organizations that have prepared overviews of the disease. Additionally, it carries resources on symptoms and diagnosis, disease management, coping, research, genetics, and statistics. The Web page also links to recent news on Alzheimer’s and has materials specifically geared toward women, men, children, and teens. A sidebar links to web pages dedicated to caregivers, memory, the brain, and senior health. The Alzheimer’s Association, National Institute on Aging, Area Agencies on Aging, Fisher Center, Family Caregiver Alliance, American College of Physicians, and other source agencies are represented.
National Institute on Aging-NIA
The NIA mission is to improve the health and well-being of older Americans through research, and to support and conduct high quality research on aging processes, age-related diseases, and special problems and needs of the aged. The agency also disseminates information and communicates with the public and interested groups on health and research advances and on new directions for research.
North Carolina Brain Health Registry
The NC Registry for Brain Health is the first registry of its kind in the State of North Carolina. The Registry is designed to increase awareness of Alzheimer’s disease and related disorders and to connect North Carolinians of all ages to research opportunities designed to improve brain health.
National Institute on Aging Balance Exercise
Each year, U.S. hospitals have 300,000 admissions for broken hips, and falling is often the cause of those fractures. Balance exercises can help you stay independent by helping you avoid a disability – often permanent – that may result from falling.
Pancreatic Cancer Action Network
PanCAN works to focus national attention on the need to find the cure for pancreatic cancer. We provide public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods.
University of North Carolina Institute on Aging
The Institute’s mandate is to promote collaborative applied and basic gerontological research, to develop innovative programs of interdisciplinary gerontological education and practice, and to provide state-of-the-art information to policy makers, program managers, service providers, clinicians, and the general public.