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Caregiver Stories

Support Through Hard Choices

Mom was formally diagnosed with Alzheimer’s at the beginning of 2016, although we saw evidence of dementia earlier than that. My Dad, her husband of 57 years at the time, took on the responsibility of caring for her. Even though I was living in San Francisco at the time, I saw the toll that caring for Mom had on Dad. I had lived away for 25 years, and in mid-2017, I chose to return to NC to help Dad care for Mom. Within a year, Dad was diagnosed with terminal blood cancer, and he passed away months later.  As he realized the end was near, he asked that I care for Mom. My stomach sank. My Mom and I had never had an easy relationship. And I couldn’t deny my Dad’s wishes. My grief therapist suggested I reach out to MemoryCare, and that was one of those decisions I look back upon as a pivotal point in my life.

Every person I encountered at MemoryCare was compassionate and didn’t judge me when I cried or was frustrated with Mom’s behavior or frustrated with the lack of support from my siblings. They recommended resources (if you are supporting someone with dementia, please read The 36 Hour Day) and shared concrete ways that I could care for myself, and ways I could interact with Mom. They gave me practical tips on how to speak with Mom (don’t argue, it’s okay to support an alternate reality) and suggested activities we could do together (walk as much as possible; silence is okay). Throughout the five years that I supported Mom as her primary caregiver, they helped me reframe my perspective to focus on all the things she could continue to do, and to be grateful for those. They named the frustrations I was feeling, and gave me permission to be angry, and then let that anger go. When I was feeling at the end of my rope, I would email my frustrations to my care team, and to my amazement a response would come within a day, empathizing with what I was going through, and sharing suggestions of what I could try next or resources available to me. When I could no longer care for Mom at home, they supported me in finding an appropriate care facility for her.

Mom entered hospice care in October 2023. One of the hardest choices I had to make was giving up our regular visits to MemoryCare. Even though we weren’t clients of MemoryCare anymore, our care team checked in regularly to see how I was doing, and to remind me to take care of myself.

Mom passed away in January 2024. I’m so grateful for the support I received from MemoryCare. Their support allowed me to treasure the last five years I had with Mom, and when I remember her, I remember the beautiful individual that MemoryCare helped me see.

— Lori McLeese, Caregiver

December 18, 2025
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Caregiver Stories

Keeping Focus

My husband, Charley Akers, grew up in Charlotte where at the early age of 7, he developed a love of photography, snapping shots of everything with his beloved Kodak Instamatic 304, complete with its film canisters in those early days. When he entered Myers Park High School, he was particularly inspired by a photography class he took. He even turned his bedroom closet into a dark room! 

Later, he was fortunate to attend the prestigious Brooks Institute of Photography in California. After graduation, he returned to the South and began a photography business in Atlanta. His clients, including Amoco Oil, AT&T, Coca-Cola, Hotel Del Coronado, Kodak, Omni Hotels, Playboy Enterprises, UPS, and Wachovia, were numerous and globally recognized Fortune 500 firms, as was his award-winning photography.

After several years on the West Coast where he honed his skills at portraiture, we moved back to the South in 2012 and were drawn to the appeal of the Western North Carolina mountains, making our home in Asheville.  Noticing his repetitive questions and a change in behavior, Charley and I learned he had mild cognitive degeneration in 2017 and by 2024 he was diagnosed with Alzheimer’s. 

The disease affects our lives in many ways. But Charley retains his interests, like hitting tennis balls, especially with our dog, Cody, who brings us both joy. Charley also holds fast to his amazing artistic talents, enjoying photographic composition in particular.  His appreciation for the natural beauty of the mountains continues, and he loves our leisurely travels along and around the Blue Ridge Parkway with its many photographic opportunities.  

We learned about the unique model of care of MemoryCare from our primary care doctor and enrolled as a family in 2022.  From our first 3-hour visit with the team of a specialized physician and a care manager, we have been impressed and grateful. The team encouraged me to take “Caregiver College,” a series of six, three-hour lectures for caregivers of people with memory disorders.  I appreciated all of the resources from caregiver services to lawyers, and information to help me understand more about what was happening to Charley’s brain, and how important it is for me, as his caregiver, to take care of myself.  

 MemoryCare has been a wonderful resource for us from the Caregivers’ College to the ongoing support by their teams. They have helped us both navigate this difficult journey step by step. We are truly grateful for all their services.

— Julia and Charley Akers

See more of Charley’s photography at CharleyAkersPhoto.com.

December 18, 2025
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Caregiver Stories

My Mom. My Hero.

MemoryCare has changed my family’s life, and the day that I met the staff was a turning point in Mom’s care.

Life doesn’t always take the path that you think it will.  Since there was no evidence in our family of memory disorders, it was hard to believe that Mom, of all people, was having problems.  Mom ate the right foods, kept her mind active, and was the poster child of health.

The thing about a memory disorder is that it creeps up on you.  A person may forget something or do something out of the ordinary and you think, we are all human and misplace things occasionally.  It is easy to force yourself to rationalize a loved one’s behavior, because, if you face the situation then you must deal with it and often times make hard decisions.

At the beginning, Mom moved into an independent retirement community.  A few years later, we noticed that Mom had started becoming forgetful about things like where she put her keys and purse.  We knew that we needed to address this as early as possible, and each day, I’m thankful that we found MemoryCare.

Mom bravely entered the MemoryCare office for her initial consultation.  In that one day, all things changed for us.  We now had a name for what was going on and a plan of action.  Even better, we had found a true advocate and friend.  MemoryCare staff helped Mom with her medicines and helped our family be the best caregivers possible.

In the last years, there were many changes.  Mom moved into assisted living and stopped driving.  Her memory failed, but her sweet, happy spirit kept going strong.  All of my life, Mom never missed an opportunity to make me feel special.  Somehow in all of the things that were lost, the generosity of spirit remained strong within her.

We are so fortunate to have had the caring staff at MemoryCare who made Mom’s life brighter.  I cherished each moment that I shared with Mom, and I thank MemoryCare for helping give us as many of those moments as possible.

— Lyn Wiseman, Caregiver

March 16, 2021
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Caregiver Stories

Any Journey Begins With a Single Step

Any journey begins with a single step.  For Betty and me, it began with the diagnosis of early stage dementia by Dr. Noel.  We were guided along this frightening and difficult path by a wonderful and caring staff which we came to see not only as gifted professionals, but as caring friends:  Friends we trusted to guide us along a path which had many twists, turns and pitfalls.  They were always available to explain and anticipate new and sometimes frightening events.  They gave me, the caregiver, suggestions as to when adult day care needed to become a part of our life.  Finally, the most difficult decision as to when it was time to move Betty to full time nursing care in a facility which was close enough for me to maintain contact.  They helped me to come to realize that I was not abandoning her, only making sure that she was well cared for, and that the time had come when Betty’s needs had exceeded my ability, not my desire, to care for her.

Moving Betty to a nursing facility was the most difficult thing I have ever done.  In the nursing facility, Betty was cared for 24 hours a day when it was hazardous to Betty and me to continue in home care.

Although the journey was not an easy one for us, the resources available at MemoryCare made it endurable.  They helped me avoid many medical and emotional pitfalls.  For this reason, I believe the people of Western North Carolina are fortunate to have the resources of MemoryCare available.  To ensure that MemoryCare will be available to those who need it in the future, I have created an investment account that will further fund MemoryCare when I join my beautiful and loving wife in our heavenly home.  I encourage anyone who has a spouse, relative or friend who has Alzheimer’s to join me in that effort.  Any gift, small or large, will insure that MemoryCare is available to those who will need it in the future.  They may never know your name or shake your hand, but they will bless you when the time comes for them to need MemoryCare.

A little song I like (shared by Dale)

Song Sung Blue
Me and you are subject to Blues now and then
When you take the blues and make a song, you sing them out again
Song sung blue weeping like a willow
Song sung blue sleeping on my pillow
Funny thing but you can sing with a cry in your voice
And before long you are feeling better, you got no choice

— Dale Rusk, Caregiver

March 3, 2021
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Caregiver Stories

Why I Give and Keep On giving …

For about two years before my husband, Len, died, I would tell his sons and his sisters that he was suffering with some dementia. That he forgot simple things, like how to adjust the thermostat or navigate the remote control on the television. But when we would travel to New Jersey to visit family, Len had just enough mental capacity left to function normally for those few days. So, family did not understand what was going on.

The staff at MemoryCare knew differently. They saw his slow deterioration over those two years. They had anticipated it. It was knowing that others had traveled this path ahead of me that made it easier for me to function as Len’s caregiver and as Len’s advocate. It was the support of the physicians and the support staff at MemoryCare that helped me negotiate those difficult months and make those heartbreaking decisions about Len’s care.

MemoryCare gave me guideposts. They also made no assumptions. The MemoryCare staff made sure that I knew to get appropriate legal advice, and that I took care of myself as best I could. They taught me that there is no weakness in asking for help.

It is more than a decade since my husband died. I have consistently supported MemoryCare with an annual donation as best I can, and I have also left part of my estate to MemoryCare so that others who travel this same road may find the support and guidance I did when I needed it most.

— Peggy Franc, Caregiver

March 3, 2021
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Caregiver Stories

Understanding and Planning

At the early age of sixty, my wife Joyce’s life was beginning to change. She was having memory problems, and she was withdrawing from her activities and friends. I couldn’t understand how this wonderful, active woman with so many friends could be changing in this way. The physicians where we lived then diagnosed her condition as depression. That diagnosis did not help Joyce, and it certainly did not help me to understand nor cope with the situation. I felt lost and helpless. We moved to the Asheville area, and our new family doctor asked my permission to set an appointment for Joyce at MemoryCare.

That visit changed everything. During that first visit to MemoryCare the doctor and nurse spent a long time examining Joyce, and during that time they were beginning my education on dealing with dementia. MemoryCare was exactly what we needed to handle this newly developing life for both Joyce and me. It wasn’t easy, but at least we understood the problem and could act accordingly. Joyce made regular visits to MemoryCare, and I volunteered to help wherever I could.

Joyce followed the normal progression of a dementia diagnosis. As she got worse she wanted to be with her family in Alabama. So after only a few years under the care of MemoryCare, we moved out of state. Joyce went into a nursing home in Alabama and passed away recently.

I have never forgotten MemoryCare and the impact their team made on our lives. It’s been sixteen years since we left the Asheville area.  Every month since then, I donated to help MemoryCare grow and expand its work with families battling dementia. Those battles are not easy, but with the aid of MemoryCare families can learn how to get through it.

MemoryCare needs and deserves our support for there are so many who are facing a life with this terrible disease. I urge you to help MemoryCare and its outreach by joining us who contribute financially today, and/or by planning for the future through your estate.  You will be affecting lives just as your life was affected.

— Gerry Dudley, Caregiver

March 3, 2021
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Caregiver Stories

Finding Strength in Despair

My partner, Regina, and I arrived for our first appointment feeling overwhelmed and near despair which is not who we were as people before dementia hit.  Regina, who was one of the most loving, happy and fun persons I’d ever known, had been angry and confused for over a year when our primary physician referred us to MemoryCare.

There we found compassion, a feeling of being understood and loved, a source of enlightenment and resources to guide us out of the tortuous maze.  We left feeling deep grief at the diagnosis of dementia, but also with strength and hope beginning to return as we continued the journey of life with dementia.  Every successive treatment session increased our ability to cope as we learned practical helps for communication, self-care and care for each other.  A thorough assessment led to medication changes which maximized Regina’s health potential.

MemoryCare is unique in treating family and patient together as well as serving all who are in need, regardless of income.  The disease is so stressful that Caregiver health is often seriously compromised which, in turn, adversely effects the person with dementia.
Our world desperately needs MemoryCare for every family dealing with dementia.  Therefore, I donate as much as I can and hope that others will do the same so that this model of care can continue to grow and spread to all in need. Regina passed on now, but I am grateful to MemoryCare for as long as I live, and I committed to leave part of my remaining estate to continue that gratitude after I, too, have passed on.

— Sharron K. St. John, Caregiver

March 3, 2021
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Caregiver Stories

Dad’s Team Spear

TEAM SPEAR is three sisters (Liz in western NC, Sue in D.C., Pat in NYC), a geriatric care manager (GCM) and our care team at MemoryCare.  Four years ago, our father’s life changed dramatically, and my sisters and I discovered that Alzheimer’s had become a part of the family.  We learned about the GCM field and met and engaged one who also immediately suggested we contact MemoryCare and have Dad evaluated as fully as possible.  That first 4-hour appointment was draining for everybody, but the sheer volume of thoughtful care for both Dad and me (technically the nearby caregiver) and the presentation of resources for each of us (and by extension, my sisters) was amazing.  The care team explained that with time, they would be able to give a more specific diagnosis and information about Dad’s future.

After a year of periodic cognitive testing and interviews with myself and the GCM (we each visit Dad once a week), we were told that Dad likely has Vascular Dementia with a ‘frosting’ of Alzheimer’s Disease: a mixed dementia illustrated by his pattern of change.  Heartbreaking, yes, but the information was HUGE!  Even with the caveat of ‘most likely diagnosis’ due to the general uncertainty about dementias, the clear and practical presentation of information by our MemoryCare team was a relief.

Dad is now living safely in a secure and more socially-oriented facility; he is quite healthy, still very verbal and articulate in spite of slowly growing confusion.  My weekly visit reports are shared with all of  TEAM SPEAR; the GCM and MemoryCare team respond quickly to any issues that arise with explanations, recommendations and follow-up.   My sisters and I found that initial learning curve to be very steep, but MemoryCare made a huge difference in our family’s peace of mind and acceptance of the future.

— Liz Spear, Caregiver

September 8, 2020
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Caregiver Stories

Like the Warmth and Comfort of a Quilt

On my husband’s bed is a locally made, hand stitched quilt. Like the beautiful quilt on the wall in the new MemoryCare building, it is a work of art. It comforts and warms him each night as he sleeps in his care facility.

About 11 or 12 years ago I noticed a gradual change in my husband, Ennalls; (rhymes with “Reynolds”). He’d had a career that required him to be able to juggle a dozen balls in the air at once. He could no longer do that and, I noticed, started to miss appointments or was unable to grasp the complexities of an issue. Our regular doctor suggested that MemoryCare might be helpful and referred us to them.

What a blessing to have found our way to MemoryCare!  Not only was Ennalls under the care of a doctor who understood dementia and all its nuances and subtleties, but also I could talk with someone who knew what I was going through.

Although the journey for each person and their loved ones differs, there are experiences that can be common with dementia. MemoryCare has helped provide us with basic info as well as tools and skills on how to deal with this degenerative disease.  Sitting down periodically with our MemoryCare doctor; sharing laughter and tears at the monthly support group; learning the ins and outs of the disease through MemoryCare workshops and their excellent “Caregiver College” – all of these resources have been invaluable to our journey.

MemoryCare was also there for us when it was time to place him in a care facility.  They had recommended that I “do my homework” and research which place would suit his needs the best.  Because they had encouraged me to move ahead, I placed his name on the waiting list, and there was a spot available for him when it was time to make that move earlier this year.

Ennalls finds comfort in his beautiful quilt. I find comfort in all that MemoryCare has provided us through the years.  Thank you, MemoryCare!

— Suzi Berl, Caregiver

September 8, 2020
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Caregiver Stories

A Chorus of Care

“Mr. Ed, Mr. Ed”- Voices ring across the parking lots, grocery stores and restaurants to us, voices of former employees from Teves Continental automotive manufacturing plants where my husband had been the Director of Operations. His knowledge and love of the automobile offered other voices with different dialects as we traveled to Germany, Austria and Switzerland for work and recreation with his business colleagues. Later in our lives, voices with other accents greeted us across mountains, prairies, small towns and cities in the United States as we participated four times in the coast to coast “Great Race” across America in his 1939 Pontiac. But eventually, they became the voices he could no longer connect to or remember.

The reality of his declining mental condition came about as a result of a home visit from a nurse who was examining us for our long term health insurance application. Her sobering assessment of his failure to pass the cognitive test and denial of his insurance coverage brought new voices into our lives. In 2010, we were introduced to the services, knowledge and personal engagement of MemoryCare. Our first meeting with our physician and social worker was in-depth with testing, observation and consultation that revealed an Alzheimer’s diagnosis. It was the beginning of regular appointments filled with not only testing, observation and advice but also encouragement, patience and constant vigilance.

In 2012, a medical emergency required the replacement of his aortic valve through complicated surgery resulting in an increased demise of his cognitive ability. The voices in our lives became a quartet of care and coordination with his regular physician, heart surgeon, cardiac physician and MemoryCare physician. Constant communication via emails and phone calls on a daily basis kept us on track with his medicines, physical needs and cognitive changes. This communication and coordination continue in our lives today-four years later.

As a caregiver, the voices at MemoryCare have provided knowledge, understanding and encouragement through times of anxiety, sadness and frustration. At their recommendation, I enrolled in the MemoryCare Caregivers Education program, and the Program’s information notebook still serves as a guide in resolving new issues of moods, hygiene and communication. The availability of information in the library and monthly MemoryCaregivers Network groups for caregivers provide a consistent voice of encouragement and the knowledge that you are not alone in the journey.

Upon the advice of our MemoryCare physician, my husband is enrolled in an adult day care program where he engages with other people and a variety of activities. As we continue our journey we know that our lives will not be overcome by the “sounds of silence” but will be surrounded and supported by a chorus of family, friends, and our community and…MemoryCare.

— Becky Anderson

September 8, 2020
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