Focusing on the needs of caregivers, this website offers an active forum for connecting caregivers with expert information.
The Alzheimer’s Association works on a global, national and local level to provide care and support for all those affected by Alzheimer’s and other dementias. They offer help through a professionally staffed 24/7 Helpline (1.800.272.3900), face-to-face support groups and educational sessions in communities nationwide, and comprehensive online resources and information through the Alzheimer’s and Dementia Caregiver Center.
Alzheimer’s Foundation of America
The Alzheimer’s Foundation of America offers a national, toll-free helpline (866-232-8484) staffed by licensed social workers, educational materials, a free quarterly magazine for caregivers and “AFA Partners in Care” dementia care training for healthcare professionals.
The Association for Frontotemporal Degeneration (AFTD)
AFTD promotes and funds research into finding the cause, therapies and cures for frontotemporal degeneration. They also offer information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers.
This website offers tips to caregivers of a loved one with dementia. It was designed by Beverly Bigtree Murphy, who cared for her husband who had dementia. She depicts her personal journey in her book, He Used To Be Somebody .
Caring.com is an online destination for family caregivers seeking information and support as they care for aging parents, spouses, and other loved ones. Caring.com offers helpful content, advice from leading experts, a supportive community of caregivers, and a comprehensive directory of eldercare services. Caring.com’s carefully researched and expert-reviewed content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare. Caring.com’s Steps & Stages offers a free guide to Alzheimer’s care. Expert advice and practical tips provided in a Custom Care Guide and e-newsletter help family caregivers learn what to expect, what to do, and how to cope with Alzheimer’s.
A free guide that provides caregivers with an easy to implement and inexpensive way to maximize the well-being of their loved one and stress associated with caregiving.
Produces Today’s Caregiver Magazine, the first national magazine dedicated to caregivers, the “Sharing Wisdom Caregivers Conferences.” and our website, caregiver.com, which includes topic-specific newsletters, online discussion lists, back issue articles from Today’s Caregiver Magazine, chat rooms and an online store. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.
Caregiver Action Network
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with significant health needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.
A care management company dedicated to helping people at every stage of aging lead more comfortable, secure and independent lives. Through our national network of care managers, toll-free support center and website, CareGuide provides families with everything they need to assess, plan, manage and monitor the best care for their loved ones.
CarePartners Adult Day Program
A program based in Asheville, NC, the adult day program provides high quality day services for impaired adults, including those with dementia. It offers a way for impaired adults to maintain their independence by living in their own homes and having a place for stimulating activities during the day in a safe and supervised environment.
Caregiver Resources & Long-Term Care (HHS)
Family caregivers play an important role in the lives of their loved ones. In-home assistance, community programs, or residential facilities enable you to stay active and accomplish everyday tasks. Provided by the U.S. Department of Health & Human Services, this is a great list for resources available to help older adults continue to live in their homes and participate in their communities.
Caring From a Distance
An organization for long-distance caregivers caring for an aging parent.
Coping with Behaviors – for Caregivers of Dementia Patients
Dr. Lisa Verges hosts this informative video that discusses the triggers of frustration and anger for caregivers and offers suggestions of how to support your relationship with the dementia patient.
Dementia 101: Information for Patients and Caregivers
An informative video on dementia by our Dr. Margaret Noel.
Dementia Care Central
DementiaCareCentral is a resource center for dementia caregivers, and more! There is already a lot of information about dementia on the Internet, but it’s not always well organized and can be overwhelming. This organization has identified, reviewed, and linked to the best of these resources and added some original content as well.
A Guide for Family and Care Partners.
Are you a family caregiver in need of information or assistance? Are you interested in learning more about the programs and services that may be of assistance to you or your loved one? The Eldercare Locator, a public service of the U.S. Administration on Aging, is the first step to finding resources for older adults in any U.S. community. Just one phone call or Website visit provides an instant connection to resources that enable older persons to live independently in their communities. The service links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.
ElderCare Online offers information for those caring for aging loved ones. Whether caring for a spouse, parent, relative or neighbor, there is an online community where supportive peers and professionals can help improve quality of life for yourself and the elder you care for.
The Family Caregiver Alliance
Established in 2001 as a program of Family Caregiver Alliance, the National Center on Caregiving (NCC) works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy and services, the NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders and family caregivers throughout the country.
The Lewy Body Dementia Association (LBDA)
LBDA works to raise awareness of Lewy body dementias (LBD), promoting scientific advances, and supporting people with LBD, their families, and caregivers. LBD is a complex disease that can present a range of physical, cognitive, and behavioral symptoms. It dramatically affects an estimated 1.4 million individuals and their families in the United States.
Lotsa Helping Hands
Lotsa Helping Hands is a free caregiving coordination web service that provides a private, group calendar where tasks for which a caregiver needs assistance can be posted. Family and friends may visit the site and sign up online for a task. The website generates a summary report showing who has volunteered for which tasks and which tasks remain unassigned. The site tracks each task and notification and reminder emails are sent to the appropriate parties.
National Alliance for Caregiving
Supports family caregivers and the professionals who help them and seeks to increase public awareness of issues facing family caregiving.
National Caregivers Library
An extensive online library for caregivers. It has hundreds of articles, forms, checklists, and links for topic-specific resources.
National Family Caregiver Support Program
The National Family Caregiver Support Program (NFCSP), established in 2000, provides grants to States and Territories, based on their share of the population aged 70 and over, to fund a range of supports that assist family and informal caregivers to care for their loved ones at home for as long as possible.
National Resource Center on Supportive Housing and Home Modification
Caregiving often requires physical demands that strain caregivers, jeopardizing their own health, strength, and energy level. Home modifications (e.g., portable ramps, roll-in showers, widened doorways) and assistive devices can provide immediate relief and enhance the ability of caregivers to deliver care with less stress. Although often overlooked in discussions of support for caregivers, the home environment is a critical component that significantly impacts the capacities of caregivers and service agencies to provide assistance.
National Transitions of Care Coalition
The last concern most individuals have when they or their loved ones are dealing with a health situation is ensuring effective communication between their doctors, nurses, social workers and other health care providers. However, poor communication between well-intentioned professionals and an expectation that patients themselves will remember and relate critical information that can lead to dangerous and even life-threatening situations. NTOCC has brought together industry leaders who have created resources to help you better understand transitional challenges and empower you as part of the care giving team.
Next Step in Care
Next Step in Care provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients.
Caregiver Alternatives to Running on Empty uses a family consultant model to provide consumer-directed respite care and comprehensive support to caregivers. The goal is to increase quality, access, choice, and use of respite and support services for low-income rural and minority families caring for a person with dementia at home.
Offers articles for both professionals and family members on elder care and long-term care and includes links to information on legal, financial, and housing issues as well as policy, research, and statistics.
Interactive web site providing information on how to create safer homes for people with dementia and ways to adapt the home environment to meet the behavioral and physical needs of people with Alzheimer’s.
Timeslips Creativity Center
Timeslips offers a free Creativity Center with 400 prompts to guide you through creative engagement. Explore tools to spark meaningful engagement!
Tech Savvy Caregiver Resources: Ideas for home activities
Written and provided by Elizabeth Williams, Executive Director at MountainCare, this resource is a compilation of online resources for activities to do with your loved one at home.
Together Again: Creative Guide for Multigenerational Living
This guide covers topics like the financial and emotional benefits of living together, proximity and privacy, and designing/remodeling your home to accommodate elderly parents.
Well Spouse is a national, not for profit membership organization that supports wives, husbands, and partners of the chronically ill and/or disabled.
Stimulating mental games, Alzheimer’s tips for caregivers, and books and downloadable online materials.